In the Haze of Moving, A Pause to Overnight my Urine to Minnesota.

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You could call that gross, or you could just call it a routine day in my life.

In the crush and mess of moving, I’m doing my best to stay on track with managing my health. Frankly, I’m not doing that great of a job. I’m working too hard, I’m not resting enough, and I’m not making enough time for the things that help me feel well — both physically and mentally.

However, I did make time to keep on track with my GI doctor in Minnesota. He’s currently treating me for yeast overgrowth in my GI tract. I really like my GI doctor, so I decided to work with him long distance when we moved. Fortunately, he has patients all over the country, so he’s used to that.

But, working with a doctor long distance means getting him the information he needs to monitor your progress, so that’s where the urine comes in. While handling my own urine is not my favorite thing to do, I just accept it as part of my reality. And honestly, it was pretty simple. I just collected it, froze it and then overnighted it.

The good news is I’m making progress on the yeast front. My initial infection rated 2.75 (whatever that means), and I’m down to a 1 now. I think the goal is to get to zero, so I’m definitely headed in the right direction. This is very good news considering I had great difficulty tolerating the recommended treatment due to my extreme sensitivity to medication. My doctor wanted me to take three different anti-microbials in fairly high doses, but I was only able to tolerate one of them at the very lowest dose. You can read more about that here.

Since I am so sensitive to medication, this is definitely a marathon not a sprint, but my doctor says I just need to keep at it slowly and steadily, and that’s what I intend to do.

I actually feel a little better in the GI department. Not go-out-and-have-a-burger-and-fries-better. It’s more that I’m eating the same things I usually do, but I feel better doing so. I count that as progress, and I’ll take what I can get.

My GI problems remain a mystery. I have very slow motility, which means my GI tract moves very, very slowly. In fact, it moves so slowly, there is no possible way I can digest enough calories in a single day to maintain my weight. That’s why I’m on a mostly liquid diet.

All my lyme doctors blame my motility disorder on the fact I have chronic lyme disease. Just another side effect.  Non-lyme doctors are not so sure. The Mayo Clinic diagnosed Idiopathic Intestinal Pseudo Obstruction, which is a fancy way of saying your small intestine isn’t really working, and we have no idea why. I’ve met with several GI doctors who are sure my issues are not lyme related, but don’t have any other answers.

Long ago, I decided to let everybody be right. If the lyme doctors think treating lyme will also treat my gut, then great. Have at it. If GI doctors think treating other issues related to my GI tract will solve my problems, they can have at it too. So that’s what I’m doing. Low Dose Immunotherapy (LDI) seems to be keeping my non-GI lyme issues in check. On the GI front, I just continue to plunk away at whatever comes up. Right now, it’s the yeast overgrowth. Once that’s under control, my GI doctor wants to look at other things, and we will see what that yields.

That’s the best I can do for now.

Sometimes I take stock and think I’m doing pretty well. Then I remember I only eat one solid meal per day, and that sort of scares me. How well can I be doing if I’m on a mostly liquid diet?

But the truth is, the liquid diet probably saved my life, as I was 81 pounds and still falling when I started it. I can’t imagine how much lower I could have gone while still maintaining life. So, I’m far removed from that horror.

But I’m also far removed from normal eating and digesting. That’s a hard place to be. In fact, I got a few tears as I typed that. I’m not sad about the food I’m not having — I got over that long ago. I’m sad because I wonder about my future. Will my digestion ever be restored to something that feels more normal? Or am I looking at it?

When I get into thought patterns like that, I remind myself to take a step back. I have to remember I have 100% control over the effort I put in every day, but zero control over the ultimate outcome. That’s out of my hands, and the less I think about the outcome, the more free I feel.

Which brings me back to today. I don’t have the answers to my complex GI riddle. However, I know I have yeast overgrowth. And I know taking care of it will help me feel incrementally better. So, I will focus on that. And when I’m done with the yeast, I will focus on the next thing, whatever that may be.

And in that manner, I will just keep going. Never giving up. Always hoping for the best.

 

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